I have a Facebook group and an Instagram page for anyone interested in either. I have clickable links to both on the sidebar of this blog, below the "About Me" section. As always you can email me if you would like as well. My email is also on the sidebar of this blog in the… Continue reading Follow me on Facebook or Instagram!
I had my annual Cardiology and Liver Appointments in Houston three weeks ago. Here is how they went. Liver: Our health insurance denied covering my liver MRI as they did not feel it was medically necessary. Come to find out the nurse who sent it in forgot to write that need for the MRI was… Continue reading Annual Cardiology and Liver Appointments Results 2018
In my Facebook journey group I asked if anyone had any questions and these were the three most asked questions that I provided answers for. I thought I would share it here on my blog for anyone interested. ***Q&A Post!*** Here are my answers to the few questions I received. Feel free to ask any… Continue reading Answers to a Few FAQ’s
I wrote this post last month and it has already been posted in my Facebook journey group, but thought it would be a good to share here on my blog too... plus it has been a few months since I last posted anything. So, sorry I have been slacking! I post a lot more often… Continue reading My Scars
***PLEASE READ FIRST: 1) I am NOT a doctor and do NOT know everything!! I will NEVER claim to know everything and I am still learning myself!! The information in this post are things that I have learned from reading a ton of research articles (and webinars/podcasts), from seeing many top doctors around the US… Continue reading The Fontan and The Liver
Today marked 28 years since my "last planned" open heart, the Fontan. Despite the Fontan's life long challenges and the side effects it has, without it I would not be alive today. The Fontan was still "new" in the medical world when I had it (1971 is when Dr. Fontan came up with the surgery,… Continue reading 28yrs Post Fontan Today!
Dad, Today marks 18 months since you passed. It has been 18 months since I last heard your voice. It has been 18 months of having a void in my life...a void that will always be there because you are no longer around, physically anyways. 18 months since my phone has gotten a text or… Continue reading Dad ~ 18 Months